Resources - Twitter Tweets August 2009

• Feedback RE the unsuccessful challenging of the NICE guidelines for ME/CFS http://bit.ly/gXhES
• Personality changes with ME/CFS? blog post http://bit.ly/b0dxr
• Another point of view about Prof de Meirleir's potential diagnostic ME/CFS test http://bit.ly/ciS4G
•  Has your doctor ruled out Celiac disease? An illness common in those with ME/CFS? http://bit.ly/rHUcm
• Could obstructive sleep apnea be making your ME/CFS worse? One persons experience http://bit.ly/OEZDw
• How D ribose and other supplements such as CoQ10 could help fatigued patients http://bit.ly/2c8XYt
• Could vaccines be cause chronic illness through oxygen starvation to the brain? http://bit.ly/DS3DQ
•  Differentiating ME/CFS from fibromyalgia http://bit.ly/4050NZ
• The benefits of social media for those with ME/CFS http://bit.ly/r2phJ
• Studies about epigallocatechin gallate (EGCG ) treatment in ME/CFS http://bit.ly/2CM4Hr
• Some symptom management treatments for #MECFS http://bit.ly/5gkc1
• What is glutathione? http://bit.ly/v63bP Glutathione is often deficient in ME/CFS
• Cognitive deficits in ME/CFS evidence discussed by one blogger http://bit.ly/39AEt
• Presence of Anti-cardiolipin antibodies in 95% of ME/CFS patients http://bit.ly/fVPGN
• Teenager took his life after suffering years of ill health http://bit.ly/Yob4l #MECFS News Story
• #ME/CFS in the news: PR chief takes East Lancashire Hospitals to tribunal http://bit.ly/3GIgRW
• Brainblogger.com: Chronic Fatigue Syndrome – An Inside Look http://bit.ly/WvwRx A CFS sufferer looks at the cognitive symptoms of #MECFS
• The CDC & Chronic Fatigue Syndrome "Research" http://bit.ly/5qYep Criticism of the CDC's #MECFS research "is warranted"
• Cortisol Supplementation for Adrenal Fatigue http://bit.ly/NVm0C Are Steroids Safe for Exhausted Adrenals?
• Dreams At Stake ME/CFS Blog: A Personal Lesson on Humility http://bit.ly/42RGe7 Severe #MECFS sufferers feel isolated & invisible
• “Potential risks of squalene in flu vaccine worse than the flu” http://bit.ly/fGFjS
• #MECFS in the news: Mum brings Pokémon closer to her son http://bit.ly/11f8kG 10 year old with CFS loves to play
• Lyme disease and its links to many illnesses (Including ME/CFS) http://bit.ly/Wc1o0 Lyme Disease Resources
• Fibromyalgia, Chronic Fatigue Syndrome & Discrimination in Health Care http://bit.ly/txTIf
• Chronic Fatigue Syndrome and Fibromyalgia Treatment: A Functional Medicine Approach http://bit.ly/3s7uLy
• Chronic Fatigue Syndrome: An Overview http://bit.ly/O820g
• Dr. Logan on H2S, Fiber and the Gut  http://bit.ly/404eOy
• Fibromyalgia, Chronic Fatigue Syndrome & Negative Attitudes Toward Each Other http://bit.ly/p0anY
• Celiac Disease Can Be Misdiagnosed As ME/CFS http://bit.ly/1aEcl9 [& there are other forms of gluten intolerance than celiac!]
• Boost in care for ME sufferers [UK] http://bit.ly/pbz3m
• Fibromyalgia, Chronic Fatigue Syndrome: Stress from Movies & Books http://bit.ly/AhJQ7 Entertainment can be a health hazard!
• HEIRS Research: Water Contaminants, Hydrogen Sulfide, Sulfates, Nrf2 & Changing Genes http://bit.ly/MBInP
• U.S. ME/CFS study recruiting participants (including healthy controls) http://bit.ly/syItS Proteomics of Cerebrospinal Fluid in CFS
• Candida Albicans, Leaky Gut, Chronic Fatigue Syndrome, Depression [video] http://bit.ly/10LfC8
• How Dangerous Is The Swine Flu Vaccine? http://bit.ly/Gplrz
• What is Carnitine (L-carnitine)? http://bit.ly/10mOTU "CFS may be caused by deficiencies in a variety of nutrients, including carnitine"
• Chronic Fatigue Syndrome – A Medical Mystery http://bit.ly/zGrCF "a brief history of CFS and an exploration of current medical studies"
• Best Herbs for CFS/ME http://bit.ly/4cF63st by @DiamonDie (author Maija Haavisto)
• Teenager with ME/CFS Commits Suicide - a response to the news story from @fightingfatige http://bit.ly/16UeCA
• August News from the CFIDS Association http://bit.ly/2uphq2 (from @fightingfatigue)
• Blood Biomarkers for CFS: A Light at the End of the Tunnel http://bit.ly/BtGM5
• Information on Pacing from the CFIDS Association (.pdf - scroll down - 1st page is blank) http://bit.ly/356wW6
• ME/CFS in the News: Tapanui District remembers a GP of significance http://bit.ly/2yKCJM Doctor who helped identify CFS
• Anti-inflammatory diet can end chronic diseases http://bit.ly/3L4tmb Possible symptom improvement for #MECFS, #FMS and more
• D-lactate acidosis in chronic fatigue syndrome http://bit.ly/2JEkqj Article with good resource links #MECFS Research
• Lyme Disease Could Cause Other Illness (such as FMS, MS, CFS, Parkinson's) http://bit.ly/CPPyK NBC News
• Surprise! Better Sleep with Gene-Eden(R), an Antiviral Supplement http://bit.ly/T4P0m - targets viruses that may be chronically active
• Chronic Fatigue Syndrome (CFS), Did You Know ... http://bit.ly/19rD4S - some basic facts & causal theories about #MECFS
• ME research charity flourishes in modest surroundings http://bit.ly/BeX21 #MECFS In the News
• Coping Skills - Remember Who You Are http://bit.ly/2iJ676 (written for #fibro, but applies to #MECFS too!) from @fibrohaven
• Guiseley woman writes book to help fight fatigue http://bit.ly/EwxPI #MECFS in the News
•  ME Agenda: RiME: Summary of the APPG on ME meeting 8 July 2008. http://bit.ly/11JDuY Bottom line: nothing getting done on #MECFS in the UK
• Herbal Medicines for Chronic Fatigue Syndrome http://bit.ly/4q6S5r
• Experimental Stem Cell Transfusion Treatment for ME/CFS http://bit.ly/wB6AZ from @fightingfatigue
• Chronic Fatigue Syndrome Mimics Stroke http://bit.ly/3Li3D0
• #MECFS in the News: Ducati rider Casey Stoner's season is ruined by mystery virus [possibly ME/CFS] http://bit.ly/1alRR4
• Chronic Fatigue vs. Chronic Fatigue Syndrome (#MECFS) http://bit.ly/1RKfWW
• Annette has had #MECFS for over 25 years. She talks about how the condition affects her life [video] http://bit.ly/bETIP
• Chronic Fatigue Syndrome, Low Cortisol & Cognitive Behavioral Therapy http://bit.ly/aEoiT
• MRC CFS/ME Expert Group Finalised Terms of Reference http://bit.ly/k4o08
• ME/CFS Controversy: http://bit.ly/2vFgAV Headhunter On the Prowl from Bringing The Heat - discussion and comments.
• Living with ME/CFS - a personal story http://bit.ly/jQCtt Blog: In Search of Light
• Ampligen for Chronic Fatigue Syndrome: Update on the Approval Process http://bit.ly/4ForW 
• Chronic fatigue syndrome can be beaten http://bit.ly/14boKI #MECFS in the News: Amy Clissold talks about having ME/CFS
• Low-Cost Drugs for Fibromyalgia & Chronic Fatigue Syndrome http://bit.ly/yi79P
• £300,000 for husband who became ill on honeymoon http://bit.ly/XgVRn #MECFS in the news: Dysentery developed into ME/CFS
• Using hypnosis to help Chronic Fatigue Syndrome http://bit.ly/LUSp7 Hypnosis can help you relax deeply & get good quality rest 
• "a list of [natural] things to do [for] hypothyroidism" (CFS, fibro....chronic illness) http://bit.ly/OFU1A Blog: Dana Baptiste
• Can monolaurin from coconut oil stop flu virus and herpes from replicating? http://bit.ly/azLQt Can #monolaurin help with #MECFS?
• Top Ten List for Recovery From Chronic Fatigue Syndrome http://bit.ly/13w1qj from Jody Smith (ncubator.ca)
• I'd rather have cancer, says Alex Wilson-Glab http://bit.ly/17Febr [suffering from #ME/CFS, teenager from Australia raising awareness]
• Treatment of a Positive H2S Test Result (Under the point of view of Shara Mhyll) http://bit.ly/43ZBiq
• ME/CFS Australia (Victoria) Parents Education and Support Session http://bit.ly/1xf31h 19 September 2009, 10am to 1pm. #MECFS Event
• We’re All In This Together Regardless of Severity http://bit.ly/RHqPC no one with #MECFS or #FMS should compare symptoms w/ other sufferers
• Inside the ME Association's ME Essential magazine – Autumn 2009 http://bit.ly/o0NCB #MECFS
• CFS Cure? God Bless America! (Part 1 of 2) [video] http://bit.ly/j19Hm New Nevada Institute wants to translate cancer treatment for #MECFS
• Time is running out to save disability living allowance and attendance allowance from being axed in the U.K.http://bit.ly/nA7gY
• Top Ten List for Recovery From Chronic Fatigue Syndrome http://bit.ly/13w1qj from Jody Smith (ncubator.ca)
• Get Your Head Out Of The Clouds...Brain Fog http://bit.ly/P4XmH Brainfog or 'Fibrofog' associated with chronic illness
• 11 Tips For Traveling With ME/CFS or FM http://bit.ly/sM6u9 
• A Typical Day [with ME/CFS]: Jodi Bassett http://bit.ly/JYCRx
• Eight Subsets of Fibromyalgia Spectrum – Where Do You Fall? http://bit.ly/XWsry
• DHEA for Fibromyalgia & Chronic Fatigue Syndrome http://bit.ly/nUlSe
• "100% of patients with chronic fatigue syndrome & fibromyalgia have an irregular heartbeat" http://bit.ly/8QUFl
• The politics of obsession: Blog: Search for the cure: my healing journey http://bit.ly/47Q78l 
• Fibromyalgia & ME/CFS Around the Web http://bit.ly/2u8wQh from @fightingfatigue
• ‘Untruths’ about NHS system of healthcare http://bit.ly/gddGq British intervention in the healthcare debate in the US and our NHS [UK]
• "Becoming disabled by chronic illness turned me into an atheist" http://bit.ly/3RQjop Blog: Newly Nerfed 
• CFS Patient Advocate: Gut dysbiosis [leaky gut] http://bit.ly/1R4K6Z #MECFS Treatments
• Annals of Internal Medicine http://bit.ly/64hxK "Chronic Fatigue Syndrome: A Comprehensive Approach to Its Definition & Study" 
• Teen with ME/CFS Would Rather Have Cancer http://bit.ly/1BVot8 from @fightingfatigue Alex is raising awareness for #ME/CFS in Australia
• Woman With Chronic Fatigue Syndrome Wins Discrimination Suit http://bit.ly/PdGid from @fibroadrienne
• Excellent Advice: Coping Tips for ME/CFS & Fibromyalgia http://bit.ly/P3kKS from @fightingfatigue (& Dr. Campbell)
• Tired of ME: CFS Compensates for Idiopathic Cardiomyopathy http://bit.ly/197x2G
• CFS Patient Advocate: Thyroid Again http://bit.ly/SrrZk
• Hemispherx Biopharma and the delay of Ampligen approval http://bit.ly/Sd0VP
• With Fibromyalgia & Chronic Fatigue Syndrome, Plan NOW for the Holidays http://bit.ly/13lEOs
• Surviving the Holidays with Fibromyalgia & Chronic Fatigue Syndrome http://bit.ly/kINjq Start in September!
• When Chronic Pain Threatens Intimacy http://bit.ly/14X2fw #MECFS in the news
• InfertilityMom: Will You Help Me Dance? (fighting CFS) http://bit.ly/91K3N Donate to ME/CFS research at the Whittemore Peterson Institute
• ME/CFS Research Abstracts from ProHealth : FightingFatigue.org http://bit.ly/e8bC8
• If You Have Chronic Fatigue, You Might Just Need L-Carnitine http://bit.ly/Cf00G
• Moderate Exercise Increases Expression for Sensory Adrenergic & Immune Genes in #MECFS Patients But Not in Normals http://bit.ly/KQ8Dh
• Chronic Fatigue Syndrome and Chinese Medicine | Healthy and Green Living http://bit.ly/7P35B 
• Bringing the Heat: An ME/CFS Blog "Looking Back - At the CFID’s Association" http://bit.ly/401rfe 
• Chronic Fatigue Syndrome: Flavonoids & Control of the xCT Antiporter! « HEIRS Research Blog http://bit.ly/aYXB9
• HHV-6 Overview "V-6 in CFS" http://bit.ly/sjPH3
• 3 strategies for helping people to get over doubting people who have invisible or under-respected illnesses http://bit.ly/3Vj0w5 
• Non-urgent transfer service can make doctor's visits much less exhausting for those with severe http://bit.ly/1UhlEp
• Pre-Order the ME/CFS Marker Self-Test http://bit.ly/SAkkC The test will be available from Prohealth.com
• The Challenges of Eating Right With Fibromyalgia & Chronic Fatigue Syndrome http://bit.ly/3smaLY from @fibroadrienne
• Fighting Fatigue CFS & Fibromyalgia Blog Carnival #13 http://bit.ly/Z4qD
• Living It, Loving It.: My RA Glasses http://bit.ly/iQub7 What it's like to have Rheumatoid Arthritis (& #fibro & #MECFS)
• Ampligen the saga continues (Part 1/3) http://bit.ly/16rKwr 
• ME/CFS – Weird Symptoms We Experience That Are Not Widely Focused On : FightingFatigue.org http://bit.ly/3m0D8l
• Examining types of fatigue among individuals with ME/CFS – Source: Disability Studies Quarterly, 2009 http://bit.ly/1a3qks
• The Elephant in the Room Series Three: Action for M.E. stuffs the elephant back into the cupboard « ME agenda http://bit.ly/8Lalj
• Coping With Crisis on Top of Chronic, Part 1 : Invisible Illness Awareness Week http://bit.ly/11CB9Z
• Breathing Exercises http://bit.ly/1OO01r Conscious deep breathing has strong healing benefits
• Psychoneuroimmunology Takes on Chronic Fatigue Syndrome | EmpowHer - Women's Health Online http://bit.ly/19Upz3 
• Carnitine for Fibromyalgia & Chronic Fatigue Syndrome http://bit.ly/1IdZCk
• H1N1 (Swine Flu) & Vaccines With Fibromyalgia or Chronic Fatigue Syndrome http://bit.ly/tmHYS
• Life as we know it: Living with ME/CFS book available online http://bit.ly/3S1JLH 
• Dreams At Stake: "Have you tried (insert remedy here)?" http://bit.ly/dqEVQ "when you tell people you have CFS, you get unsolicited advice"
• MRC publishes Minutes of 1st “CFS/ME Expert Panel” meeting « ME agenda http://bit.ly/1XLoH 
• Adrenal fatigue may be a factor in FMS, hypothyroidism, ME/CFS, arthritis & early menopause http://bit.ly/126JRF
• Patients For A Moment: Vol. 1, No. 6 // Emergiblog http://bit.ly/19Koxc Links to Chronic Illness Blogs
• Helping Each Other With Fibromyalgia & Chronic Fatigue Syndrome http://bit.ly/cwki8 from @fibroadrienne
• Alysons CFIDS Blog: Advocacy Alert: Federal CFS Advisory Committee http://bit.ly/i5lSk 
• CFS/ME - 23 YEARS & COUNTING: CFS: The Fun Of Ignorance http://bit.ly/3YvlDS  - a satirical interview - CFS is no joke.
• ME/CFS & Fibromyalgia News Around the Web : FightingFatigue.org http://bit.ly/mp3dT @fightingfatigue 
• lysons CFIDS Blog: Research Alert: National Fatigue Survey - USA http://bit.ly/3wAwPX <- study needs your participation! 
• The Limit: CFS & ME http://bit.ly/JTHdc @maccarelle's ME/CFS story 
• Ampligen the saga continues (Part 2/3) » GekkoWire http://bit.ly/1846j2
• Alysons CFIDS Blog: Research Alert: University of Utah Fatigue Study http://bit.ly/4oA25h 
• Life as we know it: Medical Entrenchment and CFS http://bit.ly/dWhBP John Herd's #MECFS story
• How Do You Prepare For Vacations Or Big Events? : FightingFatigue.org http://bit.ly/gImiL from @fightingfatigue

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