Worldwide Association for ME/CFS Awareness and Research

Resources: WAMCARE Twitter ME/CFS Article Tweets for July 2009


  • Could rituximab a drug beneficial in many autoimmune diseases + cancer help those with #MECFS ? http://bit.ly/17Agkq
  • mono/epstien-barr responsible for #me/cfs in many young people: http://ow.ly/gjau
  • s #ME/CFS related to Autism? ~http://ow.ly/gJEP This thought-provoking theory needs research. #glutathione
  • "Chronic Fatigue Syndrome & Mitochondrial Dysfunction" ~http://ow.ly/gJFS Promising research on energy-production in #ME/CFS
  • Herbs to help with #ME/CFS/CFIDS symptoms: ~http://ow.ly/gJQM
  • #ME/CFS Video by sleepydust.net ~http://ow.ly/gJWb What is ME/CFS? What is it like to have ME/CFS?
  • Open letter to UK gov't re: #ME/CFS ~http://ow.ly/gJYA InvestinME.org addresses the lack of response to the problem of ME/CFS in the UK
  •  #ME/CFS Book Recommendation (via @~InfertilityMom) "Finding Strength In Weakness" http://ow.ly/gK0K Check used bookshops
  • #ME/CFS Research Abstract: http://ow.ly/gK7y "Infectious mononucleosis may be a risk factor for chronic fatigue syndrome in adolescents"
  • "Coping with CFS: Torrington man explores his limits" ~http://ow.ly/gKdY
  • Preliminary Research into B-Cell Depletion Therapy for #ME/CFS: http://ow.ly/gKii #rituximab #methotrexate
  • "ME sufferers are too ill to get their voices heard" http://ow.ly/gM7h
  • "Switch off, Switch On" ~http://ow.ly/gMbW B-Cell Depletion Therapy "reboots" the immune system in chronic illness
  • "ME sufferers plead for research into their illness" http://ow.ly/gN7Y 3 Women in Wales tell of #ME/CFS suffering without hope
  • Sauna Therapy for #ME/CFS? ~http://ow.ly/gNaU
  • What you should know about #ME/CFS: http://ow.ly/gNdl
  • JustFourQuid.com & @rachelcreative http://ow.ly/gNvh Help fund biomedical research for #ME/CFS
  • Five Things You Should Never Say to Someone with Chronic Fatigue Syndrome ~http://ow.ly/gNB4 #ME/CFS/CFIDS or any chronic illness!
  • Financial/employment situation for people with Chronic Illness is Grim: ~http://ow.ly/gUIZ
  • "Father of chronic fatigue syndrome advocacy" dies http://ow.ly/h0EY Theodore Van Zelst 1923-2009 R.I.P
  • July News from #CFIDS Association http://ow.ly/h0Cs #MECFS Orthostatic Intolerance, CDC Plan Response, more
  • Flu & other vaccines may do more harm than good, causing chronic illnesses like ME/CFS, autism, and more! http://ow.ly/h0J1
  • #MECFS Sufferer makes cards for charity: http://ow.ly/h0uS
  • "An Open Letter to the President and the Congress of the United States of America" http://ow.ly/h0PG #MECFS Health Care Story
  • You are NOT ALONE: How I use Social Media to Help Me Cope with Chronic Illness: http://ow.ly/h0Z3
  • “I did lots of research on the internet, came across ME and thought: ‘That sounds like me’,” http://ow.ly/h11R #MECFS in the News
  • ME Association (UK) Written Submission to APG on ME Inquiry ~ http://bit.ly/UdyxZ
  • Tattoos & ME/CFS http://bit.ly/14PKSH Can Tattoos be toxic & dangerous for ppl with #MECFS? from fightingfatigue.org
  • Rich Van Konynenburg, Ph.d Papers on Glutathione and CFS http://bit.ly/i79IY #MECFS treatments & theories #glutathione
  • ME/CFS activity this past spring: http://bit.ly/Aw31o A good collection of info and links that sheds light on current ME/CFS topics
  • The "Fibromyalgia and ME/CFS Good Doctor List" http://bit.ly/10B07f Need an #MECFS-friendly doctor?
  • UK Parliamentary Debates on Vaccine-caused M.E. (Chronic Fatigue Syndrome) ~http://bit.ly/gOjdQ
  • HEB: Pressure Mounting on FDA to Approve Ampligen for CFS ~http://bit.ly/vWkTC
  • Fibromyalgia & Chronic Fatigue Syndrome: What Do You Miss the Most? http://bit.ly/Kv84N
  • Chronic Fatigue risk in Teens with Mono http://bit.ly/yoiAy Mono can lead to #MECFS
  • ME/CFS and Swine Flu ~http://bit.ly/3RunWR #MECFS #Swineflu from the ME Association
  • Listen To M.E. - An ME/CFS Recovery Story: Part I http://aboutmecfs.org/blog/?p=653
  • Listen To M.E. - An ME/CFS Recovery Story: Part II http://aboutmecfs.org/blog/?p=677
  • Hydrogen Sulfide Research for ME/CFS explained: http://bit.ly/Gpv6j
  • I Don’t Feel Lucky That My Illness is Invisible, But Am I? http://ow.ly/htY9 via @invisibleillwk Pro's & Cons of Invisible Illness
  • What is Chronic Fatigue Syndrome: ~http://bit.ly/VtDC7 Comprehensive series of articles on #MECFS
  • CFS: Chronic Fatigue Syndrome and Lactic Acid Bacteria http://bit.ly/u7Ti3
  • Dysautonomia in Chronic Fatigue Syndrome: CFS and the Involuntary Nervous System ~http://bit.ly/36UUo
  • The International ME/CFS Conference 2009 Postscript. http://bit.ly/17vcqZ
  • "CFS remains one of the least researched of all diseases" http://bit.ly/1qRv7W #MECFS What is Chronic Fatigue Syndrome?
  • Use of medications among people with chronic fatigue syndrome: ~http://bit.ly/ISMga
  • "It is possible that swine flu could trigger chronic fatigue syndrome in people who are vulnerable to it." ~http://bit.ly/EirYu
  • The CISSD Project and CFS/ME Report on the CISSD Project bit.ly/eyiG0 recommends dispensing with "Somatoform" category in DSM
  • Chronic Illness: Claims Of Cures Are Often Scams http://bit.ly/EMN4e
  • Laughing About Fibromyalgia & Chronic Fatigue Syndrome http://bit.ly/r9X6t
  • 20 Things to Say to an Ill Person http://bit.ly/a4Ntj (as opposed to what NOT to say!)
  • Chronic Stress & ME/CFS Series of Videos ~http://bit.ly/XozeS The physical impact of chronic stress & scientific research
  • Forward-ME: Minutes of meeting 8 July 2009 ~http://bit.ly/JltRA
  • #MECFS in the News: ~http://bit.ly/mDprS Local author shares Fibromyalgia, CFIDS self-help info in book (TN, USA)
  • #MECFS Event: ~http://bit.ly/2meDUE Sept. 30 From Assessment to Recovery: Holistic Approaches to Working with Young People with CFS/ME
  • The Suspected Causes of CFS ~http://bit.ly/1uCOvV Triggers for Chronic Fatigue Syndrome
  • #MECFS in the News: ~http://bit.ly/PECkv "Play explores fatigue illness in marriage"
  • Hemispherx says FDA decision on Ampligen months away ~http://bit.ly/18CiqT
  • Round up of Scottish ME and CFS issues ~http://bit.ly/TbAML from ME Agenda
  • Statements of Concern about Cognitive Behavioural Therapy and Graded Exercise Therapy for #MECFS http://bit.ly/11h2tX (UK: NICE)
  • ME/CFS Research ~http://bit.ly/3YTtx Gene expression subtypes in patients with chronic fatigue syndrome/myalgic encephalomyelitis
  • ME/CFS, Fibromyalgia & IBS Around the Web http://bit.ly/EXJK5
  • CFS and Stem Cells: A Warning [on behalf of Dr. Paul Cheney] http://bit.ly/G8ymI Experimental treatment for #MECFS
  • Why CFS Is Like Being Tied Up With Rubber Bands an excellent analogy by @rickybuchanan ~http://is.gd/1OcwE
  • #ME/CFS in the news: http://bit.ly/bwss0 Under the microscope: Shirley Conran on sleepless nights and why she refuses to live to 100
  • Documented pathology seen in ME/CFS that contra-indicates the use of GET: ~http://bit.ly/GbUlH #MECFS made worse by Exercise Therapy
  • Is Depression Part Of Your ME/CFS? http://bit.ly/hFqq7 from @fightingfatigue
  • ME Research UK Database ~http://bit.ly/4EybjV summary data of over 3,000 research publications on ME and CFS
  • Chronic Fatigue Syndrome as a result of injury is a major obstacle to returning to work. http://bit.ly/1vbdh
  • ME/CFS Research: The economic impact of chronic fatigue syndrome http://bit.ly/p3bbl
  • Herbs that Provide Natural Pain Relief http://bit.ly/fj5FE by Jacob Teitelbaum, MD author of From Fatigued to Fantastic
  • Doing Small Tasks More Efficiently http://bit.ly/Z9Uh help with "small tasks that those with severe ME/CFS are still sometimes able to do"
  • Commentary on Medicine and ME conference by John Sayer ~http://bit.ly/18ZSbD
  • ME/CFS Watch: Listen to your body after swine flu http://bit.ly/znDwj [any significant illness or trauma can trigger #MECFS]
  • ME/CFS Research Abstracts from ProHealth http://bit.ly/7ggf6
  • H2S The new CFS marker [Blogger takes the hydrogen sulfide urine test] http://bit.ly/13qPcw 
  • Ampligen for Chronic Fatigue Syndrome: Don't Give Up Hope! http://bit.ly/11nnq6
  • Understanding CFS http://bit.ly/1a6Emv "The only thing more difficult than diagnosing & treating CFS, is living with it!"
  • Supportive care for CFS http://bit.ly/llO2C For health care providers to help CFS/ME patients cope w/ illness, emotions, stress.
  • Mayo Clinic Staff article about CFS/ME: http://bit.ly/Iktcq [please note WAMCARE does not endorse GET - exercise - for #MECFS]
  • Going Chronic With Chronic Fatigue Syndrome ~http://bit.ly/pBxP6 #MECFS personal stories
  • Standing Ovation for "Standing Still Standing" ~http://bit.ly/RhPtY [theatre play about CFS & marriage] #MECFS
  • "Stevens says many illnesses like multiple-sclerosis, fibromyalgia & CFS can all be derivatives of lyme disease" ~http://bit.ly/3HXusM
  • Cardiac function fluctuates during exacerbation & remission in young adults w/ CFS & “small heart” ~ http://bit.ly/2NRUn
  • Chronic Fatigue Syndrome: Mystery Illness Explained http://bit.ly/146N3G
  • "I'm Not Lazy, I'm Just Pacing Myself" - how one blogger uses pacing to cope with chronic illness ~http://bit.ly/9qwUT
  • The National Chronic Fatigue Survey (USA) ~http://bit.ly/SXnrR Here's your chance to participate!
  • Dr. Charles Shepard on ME/CFS [video] http://bit.ly/AUQ2 #MECFS [WAMCARE does not endorse the NICE Guidelines for ME/CFS treatment]
  • ME/CFS & Fibromyalgia Around the Web ~http://bit.ly/EAwSO from @fightingfatigue
  • Swearing & Fibromyalgia Pain Tolerance ~http://bit.ly/9oWCq



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