Worldwide Association for ME/CFS Awareness and Research

Current ME/CFS Petitions

CDC Petition

The Research of the CDC for CFS/ME has been compromised by the definition of CFS that has been used to select subjects for study participation.  This petition asks the CDC to re-define CFS so research results will be useful to actual ME/CFS patients.
Please sign the petition: http://www.ipetitions.com/petition/empirical_defn_and_CFS_research/

UK Petitions

Petition to Follow Gibson Inquiry Recommendation

In 2006, The Gibson Inquiry into ME/CFS concluded that psychiatrists who work for the insurance industry have a conflict of interest when it comes to advising the Government on ME/CFS. The Inquiry Report recommended this matter be examined, but nothing has been done. Below is the text from the Petition. Please, if you live in the U.K., take 30 seconds to sign.

The All Party Parliamentary Group's Gibson Inquiry into ME in 2006 came to the conclusion that it was highly inappropriate for psychiatrists such as Simon Wessely and Peter White et al to act as advisor's on illnesses like ME CFS for the Government and the DWP while working as consultants for the medical insurance industry for companies such as UNUM Provident. The insurance industry have a clear vested interest in classifying such illnesses as psychiatric conditions (despite the WHO classification of ME as a neurological condition ICD 10 G93.3) since they have to pay out less on policies.
The recommendations of the Gibson Inquiry called for an appropriate standards body to be set up to investigate these clear and alarming vested interests. This recommendation seems to have disappeared in a puff of smoke?

We the undersigned call for a immediate public inquiry into these inappropriate and blatant conflicts of interest!

Sign the UK Petition here: http://petitions.number10.gov.uk/MEInquiry

Fibromyalgia Clinics Needed

An estimated 70% of people with ME/CFS also have Fibromyalga (FMS), a condition marked by widespread body pain and fatigue. There are not enough specialist clinics to cover services needed by the almost 2 million people suffering from FMS in the UK. Please sign this petition for those of us suffering from this additional chronic illness.  http://petitions.number10.gov.uk/FMClinics/

Norway

We've translated this Norwegian Petition  at the WAMCARE blog:  http://wamcare.blogspot.com/2009/06/mecfs-petition-for-proper-treatment-of.html  
People with ME/CFS in Norway are ignored, stigmatized, and told they have a psychological condition - they are treated in much the same way as ME/CFS patients currently in the UK. Such mistreatment abuses these patients' basic human rights and sets a poor example for the rest of the world.Here is the original petition, written in Norwegian, where you can sign.: http://www.opprop.no/opprop.php?id=meopprop


Know of any other ME/CFS/CFIDS petitions that need signatures? Please email us so we can help spread the word! info@wamcare.org

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