Worldwide Association for ME/CFS Awareness and Research

Laura Dunks

Age: 22   Location: St. Albans, Hertfordshire, England
Personal Website/blog: http://www.caringbridge.org/visit/lauradunks
Positions in WAMCARE: Board of Directors Chair, Writer
Conditions: Fairly severe ME/CFS, mild POTS (postural orthostatic tachycardia syndrome), IBS (Irritable Bowel Syndrome), asthma, allergies, eczema.
What I would be doing if well:
I am a medical student currently on leave due to fairly severe ME/CFS, when I am well enough to go back and complete my degree I hope to specialise in surgery or with children. Although if I get the opportunity to do something for people with ME/CFS I doubt I would turn it down! I also enjoy horse riding and surfing. I usually spend a lot of time volunteering or working with children with learning disabilities and also looking after or babysitting the  children of my friends. I love travel, especially backpacking and volunteering abroad, my favourite trip was 2 months travelling and volunteering in Ecuador and the Galapagos Islands for 2 months in 2007. Interests I have focused on since becoming ill:
    I am currently staying with my Grandparents who are supporting me and looking after me as I am still not well enough to look after myself.  However, I have improved since January when I was bed bound and unable to watch tv for more than 15 minutes or hold a conversation for more than 5. I can now sit up for 2-3 hours a day and walk about 30 metres, although I was managing more than that when I relapsed a month ago.
    I am very interested in photography and have had my own Nikon D200 digital SLR for 18 months now and Photoshop CS2 on my computer. I often photograph wildlife both in my grandparents garden and when taken out on short trips. I am very interested in photographing the red kites which fly over my Grandparents' garden almost daily.
    Although I can’t go dancing and or do other high energy activities with my friends I still enjoy being able to go out for a meal, or a short shopping trip or to the cinema. Recently I have become well enough to attend the meetings of my local Leo Club (youth version of the international Lions clubs) which I have been a member of since I was 16. However, it will be a while before I manage to become involved in their more energetic activities.
    I have obviously also become very involved in WAMCARE, which I at first added to my campaigning for ME/CFS but since then it became my main focus and I have incorporated all other campaigning within it and have made some lifelong friends in the WAMCARE team members and volunteers.
I also write about my health and experiences with ME/CFS as well as try and educate people on campaigns, news and updates on WAMCARE and important facts about ME/CFS and the way in which patients are treated on my Caringbridge site here:
 http://www.caringbridge.org/visit/lauradunks
Visions and goals for WAMCARE:
I want to highlight the voices of those with ME/CFS and get them heard.  I am a person who very much needs to spend time helping others and after becoming more ill was not able to do so. 
WAMCARE has very much allowed me to do that. The feeling of people telling you that you have helped them is amazing, and the knowledge of what we will do in the future is even more astounding. 
This is what I am waiting for:
  • The day when we can give our first donation to biomedical research.
  • The day when we can support a tissue bank for ME/CFS research.
  • The day when the world unites to use diagnostic criteria equivalent to or better than the Canadian criteria.
  • The day when all of the studies in the world use inclusion criteria which only incorporates those with ME/CFS
  • The day when someone with symptoms of ME/CFS gets diagnosed by a doctor in a reasonable amount of time, referred to an appropriate specialty (not psychiatry,) then treated with a beneficial treatment plan.
  • The day when the Blue Ribbon for ME/CFS means to everyone everywhere what they Pink Ribbon for breast cancer means now.
  •  The day when someone who is diagnosed is surrounded by people falling over themselves to support them, and do whatever they can to make the lives of the patient better, because they truly understand what it means to be a person with ME/CFS.
  • The day when the children of tomorrow will ask their parents in horror: "You mean there was a time when ME/CFS was called "yuppie flu" and people thought it was a psychiatric disorder like they once did with MS and Inflamatory Bowel Disease?"
  • The opportunities are infinite, but are ONLY possible with your continued support. I, like everyone else on this team, am willing to give as much as time, energy, ideas and funds as possible to this cause, but it won't be the success we know it can be without the continued support of yourself and others like you. Nothing is impossible if enough people are willing to try. We have made astounding progress in two months due to the determination and dedication of a few. Help make ALL our dreams a reality! Help make our 28 million voices HEARD! We will NOT be silenced!


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Want to join the WAMCARE Team and make a difference?
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